We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work - click below to find out how.
Research Projects
P.O.R.T has donated over £900,000 towards research and have funded projects such as Professor Jo Martin’s enzyme defect research and Professor Qasim Aziz’s research into the relationship between Ehlers-Danlos Syndrome and CIPO, as well as other research projects at The Royal London Hospital and Great Ormond Street Hospital.
HOW YOU CAN HELP
P.O.R.T. always needs support and people to fundraise, so if you or your friends/family fancy raising some money, doing a sponsored challenge, organising an event, doing a cake sale, coffee morning or similar, asking your local shop if they’ll put a collection tin on their counter or supporting us by making a donation, then this will be greatly appreciated.
Our Team
SUE STEWART
Chairperson/Co-Founder
Sue has 4 daughters & 7 grandchildren. Two of her daughters have severe gut dysmotility, Becky, has CIPO. Sue set up the charity with Sonia, in 2006, after they met at The Royal London Hospital.
SONIA FROST
Trustee/Co-Founder
Sonia is the mother of Samuel & “Angel” Emily, who passed away from CIPO complications at the age of 2. Sonia and Sue have become close friends since meeting at the Royal London Hospital.
DR NIGEL MEADOWS MD FRCPCH
Trustee
Nigel, a consultant gastroenterologist for 30 years, established the department at The Royal London Hospital, and specialised in intestinal dysmotility. He’s a keen supporter of PORT, & it’s funding of research.
BARRY STEWART
Trustee
Barry has worked in the Investment & Financial Services industry for over 30 years. He has now retired, so is able to devote more time to raising PORT’s profile, and fundraising.
IAN FROST
Trustee
Ian is ‘Angel’ Emily’s dad, and is a Senior Supervisor at Ford Motor Company where he has worked for the last 20 years.
KILIAN FITZSIMMONS-WILSON
Trustee
Kilian has a son, Charlie, who has CIPO. Kilian is a software consultant, rugby player & family man! He’s keen to raise funds & the profile of PORT!
REBECCA STANIER
Trustee
Becky is Sue's daughter, diagnosed with CIPO age 14. Becky is now mum of two and working as an Executive Personal Assistant.
ASHLEE JOHNSON
Trustee
Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
ABBY ANDREWS
Trustee
Abby’s daughter Phoebe had severe dysmotility her whole life and spent many years in hospital, suffering from this painful and debilitating condition. Sadly, Phoebe died in January 2022
