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suestewartpseudo
Nov 21, 20241 min read
Run the Big Half in aid of PORT Charity
Run the Big Half in aid of PORT Charity on Sunday 7th September 2025. Set in the heart of London starting by Tower Bridge and finishing...
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suestewartpseudo
Nov 21, 20241 min read
Apply for Funding- Pseudo-Obstruction Research Trust’s (PORT) yearly Small Grants Round
The Pseudo-Obstruction Research Trust’s (PORT) Small Grants Round is NOW OPEN! PORT funds research into chronic intestinal...
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suestewartpseudo
Sep 28, 20244 min read
Lisa Story
After years in and out of hospital and increasingly alarming diagnoses, I consider myself lucky to be alive today. I’m a 36-year-old mum,...
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suestewartpseudo
Jul 20, 20241 min read
PORT ARE FUNDING RESEARCH IN 2023
PORT are very proud to announce that we have agreed to fund the following project, commencing in September 2023, for an 18 month...
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suestewartpseudo
Sep 30, 20231 min read
UTILITY OF MOTILITY-MRI IN THE ASSESSMENT OF FOREGUT NEUROMUSCULAR FUNCTION IN CHILDREN WITH INTESTINAL PSEUDO OBSTRUCTION.
Paediatric intestinal pseudo-obstruction (PIPO) encompasses a group of rare severe disorders affecting the gastrointestinal nerves and...
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suestewartpseudo
Sep 10, 20231 min read
Rugby Shirt auctioned for PORT charity
Our wonderful member Louise Macdonald and her mum managed to get Finn Russel to donate his rugby shirt and sign it to help raise money...
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suestewartpseudo
Aug 7, 20231 min read
THE EFFECTIVENESS OF AN ACCEPTANCE AND COMMITMENT THERAPY (ACT) BASED INTERVENTION ON REDUCING PSYCHOLOGICAL DISTRESS IN THOSE WITH GASTRO-INTESTINAL DYSMOTILITY.
Gastrointestinal dysmotility relates to a spectrum of disorders where there is disruption to the movement of food through the...
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suestewartpseudo
Aug 31, 20221 min read
A NEW APPROACH TO GASTROPARESIS AND NAUSEA
The study, funded through PORT ( Pseudo Obstruction Research Trust ), will use human stomach to measure the contractions of the muscle...
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suestewartpseudo
Aug 18, 20211 min read
Sean Lock, PORT patron, sadly passes away.
We are very sad to share the news that our wonderful patron Sean Lock has passed away. Sean attended our first PORT charity ball, as a...
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suestewartpseudo
Jun 30, 20212 min read
HARNESSING MRI FOR THE DIAGNOSIS OF CHRONIC INTESTINAL PSEUDO OBSTRUCTION FUNDED BY PSEUDO OBSTRUCTION RESEARCH TRUST (PORT).
The Nottingham Gastrointestinal Magnetic Resonance Imaging (GI MRI) group has spent 20 years developing the use of MRI to evaluate the...
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suestewartpseudo
Feb 28, 20213 min read
Rare Diseases Day
The themes of Rare Disease Day 2021 – rare is many, rare is strong, rare is proud. This is our story representing these themes. Pseudo...
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suestewartpseudo
Jan 16, 20212 min read
Isla’s Story
Isla is 9 years old and was born with a rare condition that has only been partly diagnosed. Her younger years were mostly spent in...
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suestewartpseudo
Jan 8, 20212 min read
Ellie-Mai’s Story
Ellie-Mai was born in 2011 at 42 weeks. She is my third child and I had an unremarkable pregnancy and straightforward labour. As soon as...
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suestewartpseudo
Jan 7, 20214 min read
Sadie’s Story
Sadie made a dramatic entrance into the world on the 10th October 2015 and has pretty much turned our world upside down ever since. We...
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suestewartpseudo
Jan 6, 20214 min read
Ollie’s Story
Ollie (the happiest lad alive) was born on 28th August, after a 30 something hour labour, via vacuum due to low heart rate, and other...
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suestewartpseudo
Jan 5, 20213 min read
Ruby’s Story
My name is Ruby Skye and I am 13 years old. I had symptoms of a motility problem from before birth as they noticed on scans that my...
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suestewartpseudo
Jun 30, 20202 min read
DEVELOPING NEURONS: THEIR POTENTIAL FOR TISSUE REPAIR FUNDED BY PORT (PSEUDO OBSTRUCTION RESEARCH TRUST)
PORT (  Pseudo Obstruction Research Trust ), is funding £50,000 for this study which aims to demonstrate enteric neurogenesis by human...
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suestewartpseudo
Feb 22, 20201 min read
Feeding Tube Awareness Week
During Feeding Tube Awareness Week, we posted awareness posts on our social media accounts-Instagram, Facebook & Twitter. For many with ...
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suestewartpseudo
Jan 26, 20201 min read
PORT DIGEST is now finished and is avialable to read online!
PORT has sent it’s newsletter, PORT DIGEST, out to members and is available online. The first edition of PORT Digest is now finished and...
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suestewartpseudo
Jan 25, 20201 min read
Facebook donations and fundraisers raise money for PORT!
Facebook donations have been a very useful way for PORT to raise money. Since PORT signed up to Facebook payments, at the end of...
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